The Scariest Diagnosis

[A Damage Report Post]

I don’t really know how to start this update, because the weight of this particular diagnosis is quite heavy and there’s no real way to be honest about it and yet not sound like I’m being extreme at the same time. I’m not being extreme. I never am when it comes to my health, because I don’t want to scare people…and because I’m not sure people would listen to the entirety of the truth even if I did try to tell it all, since in my experience people tend to tune my words out the moment they get overwhelmed…and I know the reality of the state of my body is overwhelming.

But there really isn’t any other way to share this update except to just be totally honest and say it as it is, so here goes…the scariest and most serious of all my current diagnosis is that my brain is dying, and unless we can reverse it I will die very, very young from brain and heart failure.

Walker and I already knew that I had a lot of brain damage because I had a brain scan a couple months ago that showed that the majority of my brain was, quite literally, broken. We didn’t understand just how critical the situation was, because when I got the scan my doctor gave me the “nice” version of things…only I didn’t know that. She told me that I needed to start a specific treatment program as soon as possible to try and reverse some of the brain damage, and she told me that I would start feeling a lot better once I completed treatment. Everything sounded great except that the treatment was quite expensive and there was a big chance that my insurance wouldn’t cover it. So since we couldn’t currently afford it, we had to put it on the backburner for a few months until we got all of that worked out.

Well fast-forward to last month when I ended up at the doctor’s office after a near-death experience during the crazy firestorms and my doctor told me the real status of my brain damage. Not the previously mentioned “nice” version that they tell you when they don’t want to scare you, but the blunt truth that they tell you when they do want to scare you because your life is at serious risk.

She told me that my brain was failing, and as a result heart failure was beginning to follow. If I didn’t start treatment immediately, I would either die soon or end up brain dead, which to me would be even worse than dying. And get this, the parts of my brain that are the most damaged are the parts that control my body’s ability to heal itself…which explains a whole stinkin lot about my body and why it never seems to get healthy, but only more sick, over time. NO WONDER I seem to develop new diagnoses with every month or with every time I have a new health setback!

Well, my doctor knew I couldn’t afford the brain treatment yet, but told me that my life was more important than being able to pay her anytime soon for it. I could start right away and pay off my bills in the future whenever I could, with no deadlines or pressure…which is incredibly amazing. A huge gift from God. It blows my mind that I have a doctor to who genuinely cares about people as much as she does…who cares about me as much as she does. She told me once that she sees me as more of her daughter than her patient, and her love and care has brought so much healing to my heart and life over the last few years…I am so, so thankful.

There’s a lot more to say about my brain damage/failure, but this is enough for now because, as I shared earlier, I’m trying to share these updates in more bite-sized portions…which means I have to leave a lot of information unsaid and a lot of questions unanswered. For example, I’m sure some of you are wondering how I got all this brain damage in the first place!

I’m hoping to answer that question in my next post, but even if I end up unable to do so the answer is coming. I just need a lot of time. I’m sure you can imagine how difficult it is to put words together in a clear way when you have multiple chronic illnesses as well as loads & loads of brain damage…it takes a lot of effort and time, so I really appreciate your patience, prayers, and kindness as I continue to fight for healing as well as try to share some of my heart with the world.

Love you all,

Yours Truly,
~Cassia Dee

The Damage Report

Allrighties everybody, here it is…my long-overdue health update! Or, I guess I should say, here is part one of it. If I would’ve written this post 2 months ago, the list of my new diagnoses would have been much shorter. Buuuut….since then I’ve undergone more medical testing that has revealed over half-a-dozen new diagnoses. O_O

As I wrote last week, the long-story of these new diagnoses, treatments, and what they mean for me and my body, will come in future posts. But for now, the short story is this: I don’t just have one major disease that explains all my health issues, or one main line of treatment that is expected to help. I have, instead, multiple problems and diseases requiring multiple different treatments that often conflict with and exasperate each other. This makes treatment difficult and healing even more difficult, so if you would pray for doctor’s wisdom, and protection, strength, and healing for my body, I would really appreciate that. ❤

Old/Ongoing Diagnoses:

  • 1 1/2 years+ of mold poisoning
  • Cracked jaw & severe TMJ
  • Endometriosis (a hormone disease)
  • Adrenal Fatigue
  • Chronic migraines & headaches
  • Insomnia
  • Trigeminal Neuralgia
  • Chronic pain all over body, but especially jaw, face, head, neck, and upper back

New Diagnoses:

  • Destroyed and infected gut– SIBO (Small Intestine Bacterial Overgrowth), IBS (Irritable Bowel Syndrome), & chronic Candida infections (from mold poisoning)
  • Dysautonomia
  • Complex-PTSD (from child abuse)
  • Critical cortisol (hormone) deficiency
  • Chronic ear infections and sinus infections (from mold poisoning)
  • Lead & copper poisoning (probably from India)
  • Severe brain damage (from abuse/trauma and chronic illness)
  • Post-concussion syndrome
  • Severe chromium deficiency
  • Intense chemical sensitivity (from being all tox’d out!)
  • Hypoglycemia

PHEW, I think that’s everything!

As I share more about my diagnoses in future posts, I will link each post to its related diagnosis above. Thank you so much for your love and prayers…they mean the world. ❤

Yours Truly,
~Cassia Dee

Coming Up: The Damage Report

I’ve learned from experience that if someone asks about my health and I try to share more than one diagnosis with them, 90% of the time their eyes glaze over and they either change the subject or walk away. And it’s not because they don’t care about me or the state of my body…they just get overwhelmed and their brains switch gears on them without them realizing or meaning to, and then they move on.

And I get it. Even I can’t remember everything that’s wrong with my body without the help of medical logs and treatment checklists. It really is a huge, confusing, mess! But I’ve found that if I share too little, people think I’m basically healthy…which I totally am not. And if I share too much, people get overwhelmed and they end up retaining very little of our conversation.

Both options are pretty discouraging for me, but what’s the most discouraging is that there usually isn’t a “happy medium” that I can share in between the two. When “too little” is me sharing 1 diagnosis, and “too much” is me trying to share 2, that doesn’t leave much of a space for a middle ground…So what’s a sick girl to do??

Well, I’ve been doing some thinking and I came up with something to try! It may not be effective for everyone, but all I’m looking for right now is something more effective than usual. Hehe. And if I can manage that, then it’s a huge success 😉

So here’s what I’m going to try: Since too little isn’t a great route, and since too much isn’t either, I decided that this time around I’ll try doing both. First, I’ll write a blog post sharing a list of all my health updates and new diagnoses all in one place, and that’s it. I won’t be talking details or treatment or any of that stuff until future posts where I’ll try to write more bite-sized updates about each diagnosis individually. Hopefully that will allow me to share a more accurate health update than I’m normally able to, while making the information easy for everyone to swallow at the same time.

So let’s give this a shot and see how it goes, shall we? 🙂

Yours Truly, 
~Cassia Dee